Sunday, February 17, 2013

A little back story..

Funny how his nickname has been jellybean since birth, and now the idea of a jellybean seems risky. Risky meaning is it worth the higher numbers or not? This is our life now. My sweet baby boy
Julien was diagnosed with type 1 diabetes similar to the way most of us d-moms find out. In some horrific fashion. We were at the beach one day smiling, laughing, and playing. The next we are in the ER and he is at deaths door pounding away. At just 15 months old he had 2 IV's in his itty bitty baby arms, one giving a very slow drip of insulin, to prevent brain swelling (ahhhhh!!) and the next giving antibiotics and fluids to prevent hospital born illnesses and further dehydration.  Lying there lifeless, not a smile or even a smirk for the longest five days of my life.. Getting tested and poked and stabbed with needles every 15-30 min. At admission his blood sugar was at 790 and ketones were through the roof.. It was a long week , his recovery took time, but he came back to me, just the same as before. Well almost the same, now we have a pump attached to a tiny needle that's in his tiny tooshie, one that needs to be changed every two days. Which totally sucks. The first time we put that needle in I changed, it was so horrible, an unimaginable kind of horrible. We were told he can eat anything and do anything that a non-d child could. We just need to give him the insulin his body no longer produces on its own. I've found that french frys,pizza .. Bagels.. Sugary cereals are a once in a blue moon type of food, it's just not worth the crazy baby mood. Whenever he is higher he is like 3 terrible 2's all bottled in one! Im learning so much that i had no idea about, learning is definitely the right word.. its a uphill battle. A life long one. He is the strongest baby ever , he amazes me everyday, I poke his baby fingers 13 times every day and night, yep I have to wake a sleeping baby every night! Your traumatized at first but I can say honestly 5 months later , I am just happy he is alive. I was given a gift, one that I will never take for granted.
Type 1 has changed our family , in away not one of us will ever forget.
So why am I telling you all about my personal life? Not usually my thing.. But I'm here sharing for more then a few reasons. Maybe my story can help another family , maybe I can spread some awareness . Honestly I knew nothing of diabetes.. I can't tell you how many times I have googled to find out simple things or big things from where to buy a insulin pump pouch to what to do on sick days?! Besides the help from my wonderful endo , pediatrician & nurses , i have found so much help in multiple blogs and the CWD forum, and JDRF.
Needless to say, maybe I can meet other dmom's out there or just reach out and spread awareness!

2 comments:

  1. HI, popping in from T1P. Sorry to we had to meet this way. Both of my girls were diagnosed last year too. You can read their stories on my blog. wi

    http://prncsstefy.blogspot.com/2012/09/d-is-for-day-that-changed-everything.html

    http://prncsstefy.blogspot.com/search/label/T1%20Diabetes

    YOu will love t1p. They are so wonderfully encouraging and wise.

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  2. Two kids!! I can't imagine! Thank you so much for stoping by :)

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