Saturday, July 13, 2013

No sleep for the restless

I Read the funniest picture/quote, it said..
"You know your a parent of a diabetic when they grow up and move out and you call 911 when they don't call you for two hours" 
All I can say is dammit . Damn you diabetes. You have stolen my zzzz's forever. Ever miss something so much you want to cry ? That's me and sleep. I don't even remember what it was like sleeping through the night. With every shake or every time I roll over at night I find myself first checking his Dexcom and then the video monitor , if I can't clearly see his chest move up and down... Well now I am truly screwed because now I have to sneak in his room and make sure he is indeed breathing. Sounds silly but this my life. I'm considering investing in a mini mini fridge. Lol not a mini fridge , I want smaller, like one or two bottle size. I can't tell you how hard it is to wake up to the low alarm and have to stumble down the stairs with my contacts (which I am sleeping in every night now) stuck to my eyelids , blinking over an over , making a bottle and then stumbling back upstairs and strategically wedging that bottle into his mouth without waking my sleeping angel. It's a task that happens all to often that I wish I could wake my sleeping husband and just get a quick high five for a job well done.. Although usually when I see him soundly sleeping after waking several times to the low alarm, high alarm, battery alert.. So forth, I more often then not want to high five his face. 
Just sitting and staring at his sleeping baby body I can't help but think he will never get to be completely free. I will be up his ass for eternity .. Like it or not. We are glued together .. Forever. 
Sleep is for wusses anyways. 

Monday, July 1, 2013

Summer with diabetes

Wow. 
So summer is crazy with diabetes. You know that giant diaper bag you pack for beach days or pool outings? Mine just tripled. Feels like I have 20 kids... But I don't I have 3 . One of which has type one diabetes. So I have to make sure I have all of his diabetes supplies, in coolers , not touching the ice or too cold but cool, lol. And of course Backups to the backups of the backups just incase! A huge bag of goodies because when Julien is active his numbers drop. 
We went to great adventure hurricane harbor and I caught his dexcom right before it fell off! I was feeling so accomplished !! Though shortly after when I was bolusing him his PDM wouldn't connect, move closer it kept saying  (i was so close to him i could have been in him!! lol) and sure enough his pod is gone!! I'm wondering where it fell off and what the person who found it is thinking it is!! Haha! 
Such a relief that we have the omnipod though , beach days and the pool are next to normal without having to worry about disconnecting and running high. I've now mastered the art of stickerover usage   lol my baby is so stickered up..nothing is falling off him now!
Plus he can run around naked if he wants !! And who doesn't like doing that! Haha!