Tuesday, February 26, 2013

Diaper bag or Medical supply wasteland

I so miss the days when I opened my diaper bag and all that was on the bottom was half eaten crackers, tissues, or change! Now a days I have lancets, alcohol wipes, test strips AND half eaten crackers, tissues & change ! So depressing. My bag weighs a ton. Why I don't have arms of steel I have no idea! I have to carry with me the entire drug store! Not only do I have the usual diaper bag must haves, but now it's accompanied by the extra test strips, alcohol wipes, extra lancets, lancet device, glucose meter, backup glucose meter, batteries for the pump & meter, everything for at least two site changes .. which means ALOT of medical supply's! A insulin pen and extra pen needles. And my utmost least favorite , as if there is a favorite .. The glucagon. This is the just incase my baby doesn't wake up I have to stab him with this giant needle and pray he wakes up shot.
Cleaning out my bag was a bad idea, enter cloudy day mood.

Monday, February 25, 2013

French frys are the devil

Yup I said it. Not only do they make you hate mirrors or anything reflective that you would be able to see yourself in and regret every last delicious salty French fry. But they also jack the sugar up! Julien is without a doubt on a no french fry diet from now on! Those things are so mean! No matter what time a day no matter before or after bolused he jumped nearly 300 after only a few frys! I'm done having mini panic attacks waiting for a high after a fry! I am this boycotting the frys!!
This could be a good thing, there not really all that good for you or my ass..




Thursday, February 21, 2013

To omni pod or not to omnipod

Alright my baby is not even 2 yet an might as well put that scrunchie in his hair. The pump belts are ridiculous!! Not only do I have to change it sometime twice a day because of nap time diaper disasters!! How can pee go upward?! But have you seen the prices? They are $30-$40 EACH after shipping ! So besides the whole fashion No-no.. The summer ... Ugg the summer is coming in a couple months!!! I get nervous disconnecting for bath time.. What about the pool or omg the beach?! Sand?!! And no more feety Jammie's!! What if my son decides to suddenly notice the cool toy attached to him in a handy dandy pouch if he is always zipped in! This looks like a fun cord .. Maybe I'll pull it or better yet chew on it! Oooo the nightmares! So omni pod just seems like a good move for me. What's not to be enticed over? Not only is it cordless, but it's also the "the stabber" so I don't have to be! The video from omni pod is crazy!! So you put it on you like a sticker, and from the PDM (handy remote !) you tell it what to do and it stabs your kid for you!! He doesn't seem to notice besides the one second flinch, but I cry scream ball freak out all in my head everytime we do a site change. So the idea of someone taking over that job, sign me up! Plus no more disconnecting, he could go deep sea diving with it on if he wanted , not that he would he is a toddler but still , he has the option. So I still have more research to do but I am certainly leaning towards omnipod..


Monday, February 18, 2013

The hulk

My son the hulk! We've been battling a cold all week. No one tells you how much sick days change when you have diabetes. Man this blows!
Julien has been a mess! I feel as if I have been covered in boogers 24/7. My ear drums are blown out from the constant mommy mommy. And my emotions are all over the place. The hulk is coming out of him in more ways then one, with those higher numbers and ketones comes one angry baby, your making me angry!!! You won't like me when I'm angry!! Well that part isn't true but he is being quiet mean!
I am having a sort of emotional battle in my head with why him since his diagnoses back in September , I've read this is called "diabetes rage" lol perfect . Now that my baby is sick and seeing how miserable he is makes me so much more bitter. Being that he is baby number three , before he got T1 he got the whole chicken nugget , no need to cut that in itty bitty pieces, no need to be careful with germs either give that snot faced baby a hug ! Not anymore, my lax days are over , not with the nugget - he'll be fine ha! But germs they are my arch enemy now. I can't say eh it will build his immune system. Now I have to be super cautious and hope everyone around me and in our lives will do the same. Because what sniffles are to a non d kid could mean hospitalization to mine. Just looking at his sad face now makes me incredibly sad.
Yet in between the high blood sugars and the terrifying ketones, coughs and boogies, he still finds time to make me look at him in awe. How incredible he is that through the 20 pokes in his blood stained finger tips he powers through it all like a champ ! Strongest baby ever!

Sunday, February 17, 2013

A little back story..

Funny how his nickname has been jellybean since birth, and now the idea of a jellybean seems risky. Risky meaning is it worth the higher numbers or not? This is our life now. My sweet baby boy
Julien was diagnosed with type 1 diabetes similar to the way most of us d-moms find out. In some horrific fashion. We were at the beach one day smiling, laughing, and playing. The next we are in the ER and he is at deaths door pounding away. At just 15 months old he had 2 IV's in his itty bitty baby arms, one giving a very slow drip of insulin, to prevent brain swelling (ahhhhh!!) and the next giving antibiotics and fluids to prevent hospital born illnesses and further dehydration.  Lying there lifeless, not a smile or even a smirk for the longest five days of my life.. Getting tested and poked and stabbed with needles every 15-30 min. At admission his blood sugar was at 790 and ketones were through the roof.. It was a long week , his recovery took time, but he came back to me, just the same as before. Well almost the same, now we have a pump attached to a tiny needle that's in his tiny tooshie, one that needs to be changed every two days. Which totally sucks. The first time we put that needle in I changed, it was so horrible, an unimaginable kind of horrible. We were told he can eat anything and do anything that a non-d child could. We just need to give him the insulin his body no longer produces on its own. I've found that french frys,pizza .. Bagels.. Sugary cereals are a once in a blue moon type of food, it's just not worth the crazy baby mood. Whenever he is higher he is like 3 terrible 2's all bottled in one! Im learning so much that i had no idea about, learning is definitely the right word.. its a uphill battle. A life long one. He is the strongest baby ever , he amazes me everyday, I poke his baby fingers 13 times every day and night, yep I have to wake a sleeping baby every night! Your traumatized at first but I can say honestly 5 months later , I am just happy he is alive. I was given a gift, one that I will never take for granted.
Type 1 has changed our family , in away not one of us will ever forget.
So why am I telling you all about my personal life? Not usually my thing.. But I'm here sharing for more then a few reasons. Maybe my story can help another family , maybe I can spread some awareness . Honestly I knew nothing of diabetes.. I can't tell you how many times I have googled to find out simple things or big things from where to buy a insulin pump pouch to what to do on sick days?! Besides the help from my wonderful endo , pediatrician & nurses , i have found so much help in multiple blogs and the CWD forum, and JDRF.
Needless to say, maybe I can meet other dmom's out there or just reach out and spread awareness!